We are getting to the point as a civilization where we are better at treating cancer than neurological diseases and disorders. Thank god we are getting better at cancer. But a higher percentage of the population struggles with Neuro. Unbelievably tough riddle, I think any big developments will be too late for Sus. She is beyond tracking medically. 1 in 10,000 Parkinsons patients go through Atypical Parkinson’s: 1 in 100,000 PD patients have Aphasia and CBD. I stopped giving her a medication that put her into confident Psychosis. She would go from not being able to move to walking fast and jumping down the steps. Could not protect her, of course, several falls were involved. With the new (simpler, lighter) dosages, so far, it has been better. But it never lasts very long. Can’t stop the PBA (inability to control emotions based on a short circuit in the brain). It starts with PBA, which immediately triggers her respiratory ataxia. Similar, but for no reason, sleep apnea. I don’t buy it. Sleep apnea occurs in affected folks while they sleep. Respiratory Ataxia happens while they are trying to talk to you. Mix that with aphasia, and both impact speech. The ataxia is crazy. She will say two words, then check out. Almost like she dies, because it takes 1 or 2 seconds to come back, which seems like a lifetime, until she “wakes back up”. I am doing what I can.
💔 No words.