5/7 Thursday 8 pm
I am sorry. This week has been the worst stretch of decline since the diagnosis. As soon as I think we’re doing better, I get something new to figure out. And I do my best, but I am not a kid anymore. I get exhausted with her inability to conceptualize time. So it takes me a couple of hours once she falls asleep to relax enough to sleep. Lately, she wakes up around midnight, shortly after I fall asleep, then it all starts over again. Aphasia is significantly worse. So frustrating. I spent 40 minutes today trying to figure out what was important for her to tell me. What she was saying, I still don’t know. Then I get a bit overwhelmed at the thought of never being able to talk to my wife again, where we both understand.
There will be no weather to talk about for a few days. But I feel horrible when I schedule an update and fail.
My heart aches for you.